For all patients who have provided consent for their data to be used for the OnCoRe Research Database, please see below for the GDPR Data Transparency Information:
GDPR Data Transparency Information: The OnCoRe Research Database
The Christie NHS Foundation Trust is the sponsor for this study based in the United Kingdom. We will be using information from your medical records in order to undertake this study and will act as the data controller for this study. This means that we are responsible for looking after your information and using it properly. The Christie NHS Foundation Trust will keep identifiable information about you for 10 years after the study has finished.
Your rights to access, change or move your information are limited, as we need to manage your information in specific ways in order for the research to be reliable and accurate. If you withdraw from the study, we will keep the information about you that we have already obtained. To safeguard your rights, we will use the minimum personally-identifiable information possible.
The Christie NHS Foundation Trust will use your name, NHS number and contact details to contact you about the research study, and make sure that relevant information about the study is recorded for your care, and to oversee the quality of the study. Individuals from The Christie NHS Foundation Trust and regulatory organisations may look at your medical and research records to check the accuracy of the research study. The NHS site will pass these details to The Christie NHS Foundation Trust along with the information collected from your medical records. The only people in The Christie NHS Foundation Trust who will have access to information that identifies you will be people who need to audit the data collection process. The people who analyse the information will not be able to identify you and will not be able to find out your name, NHS number or contact details. The Christie NHS Foundation Trust will keep identifiable information about you from this study for 10 years after the study has finished.
You can find out more about how we use your information at www.christie.nhs.uk
OnCoRe Plus: The Rectal Cancer Oncological Complete Response Database 